Russian Children with Cystic Fibrosis Facing Shortage of Vital Drug

INSUBCONTINENT EXCLUSIVE:
Children living with cystic fibrosis in Russia are experiencing shortages of a vital drug as the state charity responsible for its supply
medication normally costs over $300,000.Although vital medicines are excluded from Western sanctions against Russia, mutual airspace
closures between the West and Russia as well as a departure of shipping companies from the Russian market have led to supply chain
fibrosis foundation.Olga Alyokhina, head of a Moscow region NGO that supports cystic fibrosis patients, told The Moscow Times that many
Petersburg have been reducing the doses to make their drug supplies last longer, she said.Parents of children with cystic fibrosis told The
Moscow Times that Krug Dobra has stopped responding to their questions regarding Trikafta supplies.Representatives from the charity told The
medication to children with rare and severe illnesses